Impacto en la familia del diagnóstico de Trastorno del espectro del autismo (TEA) en un hijo/auna revisión sistemática
- Sofía Lavado-Candelario 1
- Alicia Muñoz-Silva 1
-
1
Universidad de Huelva
info
ISSN: 0211-7339, 2173-6855
Año de publicación: 2023
Volumen: 49
Número: 180
Páginas: 3-53
Tipo: Artículo
Otras publicaciones en: Análisis y modificación de conducta
Resumen
En la presente revisión sistemática se analiza el impacto que tiene sobre la familia el diagnóstico de Trastorno del espectro del autismo (TEA) en un hijo o hija. Se obtuvieron un total de 44 trabajos publicados entre 2009 y 2023, cuyos hallazgos indican que el diagnóstico de TEA puede alterar la calidad de vida -con una notable presencia de estrés- y el funcionamiento familiar, con efectos en las relaciones de pareja, las relaciones padres-hijos/as con TEA y con desarrollo típico, así como en los hermanos/as del menor diagnosticado. Dicho impacto está mediado por variables como el apoyo social o los estilos cognitivos paternos. Por todo ello, resultan cruciales las intervenciones para dotar a las familias de estrategias para manejar tanto el impacto del diagnóstico como el día a día con sus hijos e hijas. Por último, futuras investigaciones deberían profundizar en los temas menos explorados como las consecuencias para los hermanos.
Referencias bibliográficas
- Abidin, R. (1995). The parenting stress index. 3rd ed. Odessa, FL: Psychological Assessment Resources.
- Achenbach, T., & Rescorla, L. (2001). Manual for the ASEBA school-age forms & profiles. Burlington: Research Center for Children, Youth, & Families, University of Vermont.
- Andersson, G., Miniscalco, C., & Gillberg, N. (2017). A 6-year follow-up of children assessed for suspected autism spectrum disorder: Parents’ experiences of society’s support. Neuropsychiatric Disease and Treatment, 13, 14. https://search.proquest. com/docview/1925418093?account id=14549
- Albarracín, A., Rey, L. y Jaimes, M. (2014). Estrategias de afrontamiento y características sociodemográficas en padres de hijos con trastornos del espectro autista. Revista Virtual Universidad Católica del Norte, 42, 111-126.
- Arnold, D., O’Leary, S., Wolff, L., y Acker, M. (1993). The Parenting Scale: A measure of dysfunctional parenting in discipline situations. Psychological Assessment, 5, 137–144. doi: 10.1037/1040- 3590.5.2.137
- Bates, E. (1976). Language and context: The acquisition of pragmatics. New York, NY: Academic Press.
- Bengston, V., y Schrader, S. (1982). Parent-child relations. In D. Mangen and W. Peterson (Eds.), Research instruments in social gerontology, volume 2: Social roles and social participation (pp. 115–185). Minneapolis, MN: University of Minnesota Press.
- Biringen, Z. (2008). The emotional availability (EA) scales and the emotional attachment & emotional availability (EA2) clinical screener: Infancy/early childhood version; middle childhood/youth versions; therapist/ interventionist manual; couple relationship manual (4a ed.), Boulder. http:// emotionalavailabilty.com
- Bertalanffy, L. (1976). Teoría General de los Sistemas. Fondo de Cultura Económica. México.
- Bleuler, E. (1911). Demencia Praecox oder Gruppe der Schizophrenien. Leipzig, Alemania: Deuticke.
- Bloch, J., y Weinstein, J. (2010). Families of young children with autism. Social Work in Mental Health, 8(1), 23-40. doi: http:// dx.doi.org/10.1080/15332980902932342
- Boer, F., Goedhart, A. y Treffers, P. (1992). Siglings and their parents. En F. Boer y J. Dunn (Ed.), Children´s sibling relationships. Developmental and clinical issues (pp. 41- 54). Hillsdale: Erlbaum Associates.
- Bonis, S. (2016). Stress and parents of children with autism: A review of literature. Issues in Mental Health Nursing, 37(3), 153-163. doi: http://dx.doi.org/10.3109/01612840.2 015.1116030
- Brewer, A. (2018). “We were on our own”: Mothers’ experiences navigating the fragmented system of professional care for autism. Social Science & Medicine, 215, 61-68. doi: http://dx.doi.org/10.1016/j. socscimed.2018.08.039
- Bristol, M. (1987). Mothers of children with autism or communication disorders: successfull adaptation and the double ABCX Model. Journal of Autism and Developmental Disorders, 17(4), 469-486.
- Brown, J. (2013). Recurrent grief in mothering a child with an intellectual disability to adulthood: grieving is the healing. Child and Family Social Work, 21(1), 113-122.
- Bruininks, R., Woodcock, R., Weatherman, R., y Hill, B. (1996). Scales of independent behavior Revised. Allen, TX: DLM Teaching Resources.
- Bryson, S., Zwaigenbaum, L., McDermott, C., Rombough, V., y Brian, J. (2008) The Autism Observation Scale for Infants: scale development and reliability data. Journal Autism Disorder. 38(4), 731-738.
- Cake, K. (2014). Typically developing siblings of children diagnosed with autism spectrum disorder (ASD): A study of similarities in patterns of adaptive skills among the typically developing sibling and the ASD diagnosed child (Order No. AAI3596424). https://search.proquest.com/docview/155 2604882?accountid=14549
- Cohrs, A., y Leslie, D. (2017). Depression in parents of children diagnosed with autism spectrum disorder: A claims-based analysis. Journal of Autism and Developmental Disorders, 47(5), 1416-1422. doi: http://dx.doi.org/10.1007/ s10803-017-3063-y
- Constantino, J. (2002). The Social Responsiveness Scale. Los Angeles: Western Psychological Services.
- Coffield, C. N., Spitalnik, D. M., Harris, J. F., & Jimenez, M. E. (2021). Exploring the experiences of families of Latino children newly diagnosed with autism spectrum disorder. Journal of Developmental and Behavioral Pediatrics, 42(9), 711-716. https:// doi.org/10.1097/DBP.0000000000000965
- Cowan, R. (2011). Couples’ experiences of raising a child on the autism spectrum: A narrative study (Order No. AAI3429149). https:// search.proquest.com/docview/873851091 ?accountid=14549
- Cox, A., Klein, K., Charman, T., Baird, G., Baron Cohen, S., Swettenham, J. (1999). Autism spectrum disorders at 20 and 42 months of age: stability of clinical and ADI-R diagnosis. Journal of Child Psychology and Psychiatry, 40, 719-32.
- Critchley, E., Cuadros, M., Harper, I., SmithHowell, H., & Rogish, M. (2021). A parent-sibling dyadic interview to explore how an individual with Autism Spectrum Disorder can impact family dynamics. Research in Developmental Disabilities, 111, 13. https://doi.org/10.1016/j.ridd.2021.103884
- Cunninham, C. y Davis, H. (1988). Trabajar con los padres: marcos de colaboración. Madrid: S.XXI.
- Dadds, M., y Powell, M. (1991). The relationship of interparental conflict and global marital adjustment to aggression, anxiety, and immaturity in aggressive and nonclinic children. Journal of Abnormal Child Psychology, 19, 553–567. doi:10.1007/ BF00925820
- Damville, E., Rousselot-Pailley, B., Velasquez, P., Clouet, A., Nombret, K., Golse, B., y Robel, L. (2017). L’évaluation de l’enfant en centre de ressources autisme: Analyse de récits de parents par la théorisation ancrée. La Psychiatrie De l›Enfant, 60(2), 305-327. doi: http://dx.doi.org/10.3917/psye.602.030
- Davies, J. (2010). Autism spectrum disorder: Impact of severity and emotional availability in the parent-child dyad (Order No. AAI3369433). https://search.proquest. com/docview/622308174?account id=14549
- Dawson, G., Jones, E., Merkle, K., Venema, K. , Faja, S., Kamara, D., Murias, M., Greenson J., Winter, J., Smith M., Rogers, S., Webb, S. (2012). La intervención conductual temprana se asocia con actividad cerebral normalizada en niños pequeños con autismo. Journal of the American Academy f Child and Adolescent Psychiatry. 51(11) 1150-1159.
- Delgado, R. (2014). Elaboración del duelo de una madre cuyo hijo trabajaba como sicario en Ciudad Juárez, Chihuahua. Nóesis, 23(46), 224-244.
- Doménech, E. (1997). El estrés de los padres y el clima familiar del niño autista. En A. Polaino-Lorente, E. Doménech y F. Cuxart, (Ed.), El impacto del niño autista en la familia (pp. 95-110). Navarra: Rialp.
- Dovgan, K., y Mazurek, M. (2018). Differential effects of child difficulties on family burdens across diagnostic groups. Journal of Child and Family Studies, 27(3), 872-884. doi: http:// dx.doi.org/10.1007/s10826-017-0944-9
- Ekman, P., Friesen, W., y Hager, J. (2002). The Facial Action Coding System. Palo Alto, CA: Consulting Psychologists Press
- Elizalde, M. (2016). Autism and the family: Neurologically typical-developing children’s experience of the relationship with their parents in the context of having a sibling diagnosed with autism (Order No. AAI3745476). https://search.proquest. com/docview/1865272878?account id=14549
- Elsabbagh, M., Volein, A., Holmboe, K., Tucker, L., Csibra, G., Baron-Cohen, S., Johnson, M. (2009). Visual orienting in the early broader autism phenotype: Disengagement and facilitation. Journal of Child Psychology and Psychiatry, 50(5), 637-642. doi:http://dx.doi. org/10.1111/j.1469-7610.2008.02051.x
- Español, S., y Rivière, A. (2000). Gestos comunicativos y contextos interpersonales: un estudio con bebés de 10 a 16 meses. Estudios en psicología, 21, 65- 66, 225-245.
- Eyberg, S., y Pincus, D. (1999). Eyberg Child Behavior Inventory and Sutter-Eyberg Student Behavior Inventory–Revised: Professional manual. Odessa, FL: Psychological Assessment Resources.
- Ferrando-Lucas, M.T., Martos, J., Llorente, M., Freire, S., Ayuda, R., Martínez, C. (2002). Espectro autista. Estudio epidemiológico y análisis de posibles subgrupos. Revista Neurología, 34, 38, 49-53.
- Funk, J. y Rogge, R. (2007). Testing the ruler with item response theory: Increasing precision of measurement for relationship satisfaction with the Couples Satisfaction Index. Journal of Family Psychology, 21, 572–583. http://dx.doi.org/10.1037/0893- 3200.21.4.572
- Georgiades, S., Szatmari, P., Zwaigenbaum, L., Bryson, S., Brian, J., Roberts, W., Garon, N. (2013). A prospective study of autistic-like traits in unaffected siblings of probands with autism spectrum disorder. JAMA Psychiatry, 70(1), 42-48. doi: http://dx.doi. org/10.1001/2013.jamapsychiatry.1
- Giné, C. (2001). Inclusión y sistema educativo. Atención a la diversidad en el sistema educativo. Universidad de Salamanca: INICO.
- Gliga, T., Smith, T., Likely, N., Charman, T., y Johnson, M. (2018). Early visual foraging in relationship to familial risk for autism and hyperactivity/ inattention. Journal of Attention Disorders, 22(9), 839-847. doi: http://dx.doi. org/10.1177/1087054715616490
- Hamre, K. (2018). Family experiences: The impact of family structure and autism spectrum disorder on social outcomes (Order No. AAI10253286). https://search.proquest. com/docview/2062875223?account id=14549
- Harris, S. (2001). Los hermanos de niños con autismo. Su rol específico en las relaciones familiares. Madrid: Narcea.
- Harrison, P., & Oakland, T. (2003). Adaptive behaviour assessment system manual (2th ed.). San Antonio, TX: Harcourt Assessment.
- Hartley, S., Barker, E., Baker, J., Seltzer, M., y Greenberg, J. (2012). Marital satisfaction and life circumstances of grown children with autism across 7 years. Journal of Family Psychology, 26(5), 688-697. doi: http:// dx.doi.org/10.1037/a0029354
- Hartley, S., Papp, L., Blumenstock, S., Floyd, F., y Goetz, G. (2016). The effect of daily challenges in children with autism on parents’ couple problem solving interactions. Journal of Family Psychology, 30(6), 732-742. doi: http:// dx.doi.org/10.1037/fam0000219
- Haynes, S., Floyd, F., Lemsky, C., Rogers, E., Winemiller, D., Heilman, N., Cardone, L. (1992). The Marital Satisfaction Questionnaire for Older Persons. Psychological Assessment, 4, 473– 482. doi:10.1037/1040-3590.4.4.473
- Herman, E. (2014). Growing up with autism: The educational impact on neurotypical siblings (Order No. AAI3602910). https:// search.proquest.com/docview/161437467 0?accountid=14549
- Hernández, Mª., Ruíz, B., y Martín, A. (2011). Déjame que te hable de los niños y niñas con autismo de tu escuela. Madrid: Teleno ediciones.
- Hodgetts, S., Nicholas, D., y Zwaigenbaum, L. (2013). Home sweet home? families’ experiences with aggression in children with autism spectrum disorders. Focus on Autism and Other Developmental Disabilities, 28(3), 166-174. doi: http:// dx.doi.org/10.1177/1088357612472932
- Hurley, R. S., Losh, M., Parlier, M., Reznick, J. S., & Piven, J. (2007). The broad Autism Phenotype Questionnaire. Journal of Autism and Developmental Disorders, 37, 1679–1690. http://dx.doi.org/10.1007/ s10803- 006-0299-3
- Kanner, L. (1943). Autistic disturbances of affective contact. Nervous Child, 2, 217-250.
- Keen, D., Couzens, D., Muspratt, S., y Rodger, S. (2010). The effects of a parent-focused intervention for children with a recent diagnosis of autism spectrum disorder on parenting stress and competence. Research in Autism Spectrum Disorders, 4(2), 229- 241. doi: http://dx.doi.org/10.1016/j. rasd.2009.09.009
- Lambert-Brown, B., McDonald, N., Mattson, W., Martin, K., Ibañez, L., Stone, W., y Messinger, D. (2015). Positive emotional engagement and autism risk. Developmental Psychology, 51(6), 848-855. doi: http:// dx.doi.org/10.1037/a0039182
- Lovibond, S., y Lovibond, P. (1995). Manual for the Depression Anxiety Stress Scales (2nd ed.). Sydney, NSW, Australia: Psychological Foundation of Australia.
- López-Gómez, S., Rivas, R., y Taboada, E. (2010). El papel de la intervención psicoeducativa en la sintomatología del trastorno autista. Apuntes de psicología, 28, 145-159.
- Lord, C., Rutter, M., DiLavore, P., Risi, S., Gotham, K., Bishop, S. (2012). Autism Diagnostic Observation Schedule. 2nd. Torrance, CA: Western Psychological Services.
- Lösche, G. (1990). Desarrollo sensoriomotor y de acción en niños autistas desde la infancia hasta la primera infancia. Revista de psicología y psiquiatría, 31(5), 749-761.
- Ludlow, A, Skelly, C, Rohleder, P. (2011). Challenges faced by parents of children diagnosed with autism spectrum disorder. Journal of Health Psychology. 2;17(5), 702‐711. doi: 10.1177/1359105311422955.
- Matson, J. (2009). Comorbidity: diagnosing comorbid psychiatric conditions. Autism spectrum disorders. Psychology Times, 26, 43-44.
- McCubbin, H., y Patterson, J. (1983). The family stress process: the double ABCX model of adjustment and adaptation. En H. McCubbin, M. Sussman y J. M. Patterson (Ed.) Social stress and he family (pp.7-37). New York: Haworth
- Miaja, M., y Moral de la Rubia, J. (2013). El significado psicológico de las cinco fases del duelo propuestas por Klüber-Ross mediante las redes semánticas naturales. Psicooncología, 10(1), 109-130.
- Moody, E., Kaiser, K., Sharp, D., Kubicek, L., Rigles, B., Davis, J., y Robinson Rosenberg, C. (2019). Improving family functioning following diagnosis of ASD: A randomized trial of a parent mentorship program. Journal of Child and Family Studies, 28(2), 424-435. doi: http://dx.doi.org/10.1007/s10826-018- 1293-z
- Mount, N., y Dillon, G. (2014). Parents’ experiences of living with an adolescent diagnosed with an autism spectrum disorder. Educational and Child Psychology, 31(4), 72-81. https://search. proquest.com/docview/1648598292?acco untid=14549
- Mullen, E. (1995). Mullen scales of early learning (AGS ed.). Circle Pines, MN: American Guidance Service Inc.
- Navot, N., Jorgenson, A., Vander Stoep, A., Toth, K., y Webb, S. (2016). Family planning and family vision in mothers after diagnosis of a child with autism spectrum disorder. Autism: The International Journal of Research and Practice, 20(5), 605-615. doi: http://dx.doi. org/10.1177/1362361315602134
- Negri, L., y Castorina, L. (2014). Family adaptation to a diagnosis of autism spectrum disorder. In J. Tarbox, D. R. Dixon, P. Sturmey & J. L. Matson (Eds.), Handbook of early intervention for autism spectrum disorders: Research, policy, and practice; handbook of early intervention for autism spectrum disorders: Research, policy, and practice (pp. 149-174, Chapter XXIII, 834 Pages) Springer Science + Business Media, New York, NY. doi:http://dx.doi. org/10.1007/978-1-4939-0401-3_7. https://search.proquest.com/docview/1 715670449?accountid=14549
- Olson, D. H. (2011). FACES IV and the Circumplex Model: validation study. Journal of Marital and Family Therapy, 3(1), 64–80
- Ooi, K., Ong, Y., Jacob, S., y Khan, T. (2016). A meta-synthesis on parenting a child with autism. Neuropsychiatric Disease and Treatment, 12, 18. https://search.proquest. com/docview/1789506412?account id=14549
- Orenski, K. (2012). Marital satisfaction, parenting stress, coping skills, and its effects on sibling behavior among married and divorced couples raising a child with an autism spectrum disorder: A research proposal (Order No. AAI3503481). https:// search.proquest.com/docview/134879578 5?accountid=14549
- Ozonoff, S., Iosif, A., Baguio, F., Cook, I., Hill, M., y Hutman, T. (2010). A prospective study of the emergence of early behavioral signs of autism. Journal of the American Academy of Child & Adolescent Psychiatry, 49, 256-266.
- Paniagua, G. (1999). Familias con niños con necesidades educativas especiales. En A. Marchesi, C. Coll y J. Palacios, Desarrollo psicológico y educación 3. Trastornos del desarrollo y necesidades educativas especiales (pp. 469-493). Madrid: Alianza.
- Papp, L., y Hartley, S. (2018). Mothers’ and fathers’ prescription drug misuse in family contexts: Implications for the adjustment of parents of children with and without autism. Addiction Research & Theory, 26(4), 267-274. doi: http://dx.doi.org/10.1080/16 066359.2017.1351552
- Papp, L., y Hartley, S. (2019). Child-present and child-themed marital conflict in daily life of parents of children with and without autism spectrum disorder. Developmental Psychology, 55(1), 148-156. doi:http:// dx.doi.org/10.1037/dev0000631
- Pereira, R. (2010). Evolución y diagnóstico del duelo normal y patológico. Sistemas Familiares, 17(10), 656-663.
- Polaino-Lorente, A. (1997). El estrés de los padres del niño autista: ¿Es el mismo para el padre que para la madre? En A. Polaino-Lorente, E. Doménech y F. Cuxart, El impacto del niño autista en la familia (pp. 83-93). Navarra: Rialp.
- Post, S., Pomeroy, J., Keirns, C., Cover, V., Dorn, M., Boroson, L., y Walsh, R. (2013). Brief report: Stony brook guidelines on the ethics of the care of people with autism and their families. Journal of Autism and Developmental Disorders, 43(6), 1473-1476. doi: http://dx.doi.org/10.1007/s10803-012- 1680-z
- Pozo, P., Sarriá, E. y Méndez, L. (2006). Estrés en madres de personas con trastornos del espectro autista. Psicothema, 18(3), 342-347.
- Rivard, M., Morin, M., Mercier, C., Terroux, A., Mello, C., y Lépine, A. (2017). Social validity of a training and coaching program for parents of children with autism spectrum disorder on a waiting list for early behavioral intervention. Journal of Child and Family Studies, 26(3), 877-887. doi: http://dx.doi. org/10.1007/s10826-016-0604-5
- Rivière, A. (1997). Definición, etiología, educación, familia papel psicopedagógico en el autismo. Curso de desarrollo normal y autismo. Santa Cruz de Tenerife.
- Robinson, C., Mandleco, B., Olsen, S., y Hart C. (1995). Authoritative, authoritarian, and permissive parenting practices: development of a new measure. Psychology Report, 77 819–830
- Rutter, M. (1966). Behavioural and cognitive characteristics of a series of psychotic children. En J.K. Wing (Ed.), Early Childhood Autism (pp. 51-58). Oxford: Pegamon Press.
- Rutter, M., Barley, A., Berement, S., LeCouteur, A., Lord, C., y Pickles, A. (2003). Social communication questionnaire (SCQ). CA Western Psychological Service, Los Angeles
- Rutter, M., LeCouteur, A., y Lord, C. (2008). Entrevista de diagnóstico de autismo Revisada. Los Ángeles: Servicios psicológicos occidentales.
- Rutter, M., y Lockyer, L. (1967). A five-to-fifteenyear follow-up study of infantile psychoses. I. Description of the sample. British Journal of Psychiatry, 113(504), 1169-1182.
- Sánchez, R., y Martínez, R. (2014). Causas y Caracterización de las Etapas del Duelo Romántico. Acta de Investigación Psicológica, 4(1), 1329-1343.
- Sanders, M., Waugh, L., Tully, L., y Hynes, K. (1996). The revised Family Observation Schedule (3rd ed.). Brisbane, QLD, Australia: The University of Queensland, Parenting and Family Support Centre Saunders, B., Tilford, J., Fussell, J., Schulz, E., Casey, P., y Kuo, D. (2015). Financial and employment impact of intellectual disability on families of children with autism. Families, Systems, & Health, 33 (1), 36-45. doi: http://dx.doi.org/10.1037/ fsh0000102
- Schlebusch, L., y Dada, S. (2018). Positive and negative cognitive appraisal of the impact of children with autism spectrum disorder on the family. Research in Autism Spectrum Disorders, 51, 86-93. doi: http://dx.doi. org/10.1016/j.rasd.2018.04.005
- Schopler, E., Lansing, M., Reichler, R., y Marcus, L. (2005). PEP-3 Psychoeducational Profile. Austin: Texas Pro-Ed.
- Sellmaier, C. (2016). Fathers caring for children with special health care needs: Experiences of work-life fit (Order No. AAI3743583). https://search.proquest.com/docview/185 0192352?accountid=14549
- Sim, A., Cordier, R., Vaz, S., Netto, J., y Falkmer, T. (2017). Factors associated with negative co-parenting experiences in families of a child with autism spectrum disorder. Developmental Neurorehabilitation, 20(2), 83-91. doi: http://dx.doi.org/10.3109/17518423.2015. 1069414
- Simón, M., Correa, N., Rodrigo, M., y Rodríguez, M. (1998). Desarrollo y educación familiar en niños con cursos evolutivos diferentes. En M. Rodrigo y J. Palacios (coords) Familia y desarrollo humano (pp. 445- 464). Madrid: Alianza.
- Snyder, D. (1997). Marital satisfaction inventory, revised. Los Angeles, CA: Western Psychological Services. Sparrow S., Cicchetti D., y Balla, D. (2005). Vineland Adaptive Behavior Scales. 2nd ed. Pine Circles, MN: AGS Publishing.
- Tellegen, C., y Sanders, M. (2014). A randomized controlled trial evaluating a brief parenting program with children with autism spectrum disorders. Journal of Consulting and Clinical Psychology, 82(6), 1193-1200. doi: http://dx.doi.org/10.1037/a0037246.
- Trute, B., y Hiebert-Murphy, D. (2002). Family adjustment to childhood developmental disability: A measure of parent appraisal of family impacts. Journal of Pediatric Psychology, 27(3), 271–280. http://dx.doi. org/10.1093/jpepsy/27.3.271.
- Tsai, H., Cebula, K., Liang, S., y FletcherWatson, S. (2018). Siblings’ experiences of growing up with children with autism in taiwan and the United Kingdom. Research in Developmental Disabilities, 83, 206- 216. doi: http://dx.doi.org/10.1016/j. ridd.2018.09.001
- Vaudrey, B. (2016). Effects of sibling quantity and birth order on problem behaviors in children with autism spectrum disorder and their typically-developing siblings (Order No. AAI3737075). https://search.proquest.com/ docview/1845629153?accountid=14549
- Van Steijn, D., Oerlemans, A., de Ruiter, S., van Aken, Marcel A., Buitelaar, J., y Rommelse, N. (2013). Are parental autism spectrum disorder and/or attention-deficit/hyperactivity disorder symptoms related to parenting styles in families with ASD (+ADHD) affected children? European Child & Adolescent Psychiatry, 22(11), 671-681. doi: http://dx.doi. org/10.1007/s00787-013-0408-8.
- Vermeulen, P. (1998). Solo pensamientos…Los padres de niños con TGD y sus cogniciones. En S. Muñoz, y R. de Lorenzo, (Dir.) (1996). La esperanza no es un sueño. (Actas del V Congreso internacional de Autismo-Europa). Barcelona.
- Watson, D., Clark, L., y Tellegen A. (1988). Development and validation of brief measures of positive and negative affect: The PANAS scales. Journal Personal Social Psychology, 54 1063–1070.
- West, M. (1986). El impacto del retardo mental sobre la familia: implicaciones para la prevención. Siglo Cero, 108, 50-56.
- Wetherby, A., y Prizant, B. (2002). Communication and symbolic behavior scales developmental profile. Baltimore: Paul H Brookes.
- Whittingham, K., Sofronoff, K., Sheffield, J., y Sanders, M. (2009). Stepping stones triple P: An RCT of a parenting program with parents of a child diagnosed with an autism spectrum disorder. Journal of Abnormal Child Psychology, 37(4), 469-480. doi: http:// dx.doi.org/10.1007/s10802-008-9285-x.
- Wiley, A. (2017). Unlocking disparity of services for latino children with autism spectrum disorder: Are mothers the answer? (Order No. AAI10143608). https://search.proquest.com/ docview/1910842798?accountid=14549
- Wing, L., Gould, J. (1979). Severe impairments of social interaction and associated abnormalities in children: epidemiology and classification. Journal of Autism Developmental Disorder, 9, 11-29.
- Woodgate, R., Ateah, C., y Secco, L. (2008). Living in a world of our own: the experience of parents who have a child with autism. Qualitative Health Research, 18, 1075–1083.
- Zablotsky, B., Kalb, L., Freedman, B., Vasa, R., y Stuart, E., (2014). Health care experiences and perceived financial impact among families of children with an autism spectrum disorder. Psychiatric Services, 65(3), 395-398. doi: http://dx.doi. org/10.1176/appi.ps.201200552
- Zarit S., Reever K., Bach-Peterson J. (1980). Relatives of the impaired elderly: Correlates of feelings of burden. Gerontologist, 20 649–655